Not much is known about brain cancer, and the prognosis is never glowing given so little is known about it.
While we have dedicated research teams working day in and out to find a cure, the reality is we can't expect one in the near future.
So what do people diagnosed with this horrible disease and their families do in the mean time? What happens right now, tomorrow and next week?
It's a question many are faced with, and often left with out any answers too.
This week we bring you the story about the Hodgson Family who were not only dealt those card of a brain cancer diagnosis - but during COVID.
Speedie Hodgson was in Melbourne at St Vincents and his family, daughter Victoria were here in Warrnambool, and found our via FaceTime that Speedie had 12 months left to live.
The family were left with no answers, huge amounts of information, but none of it made any sense.
They navigated the uncharted waters of brain cancer with some great clinical support, but the human side, the personal impact left a lot to be desired.
That was until Peace of Mind Foundation entered their lives.
Jonathan Muller is the only dedicated Brain Cancer support worker in Australia and the Peace of Mind foundation is a small mostly volunteer led charity which is a victim of its own circumstance. It is in so much demand, but only receives a fraction of the philanthropic support it needs to guarantee it continues each year.
Speedies Legacy is about sharing he and his families story, in the hope that we as South West Victorians are inspired to help this amazing organisation continue.